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My name is Karin Torgny, I’m from Sweden. My background is in journalism and culture studies. I used to work in “The Development Centre for Double Exposure” for many years, and our mission was to improve and spread knowledge about violence against women with disabilities. My special interest during these years was AAC. Today I work for Unicef and in different projects on human rights issues.

A year ago I did my accredited Talking Mats training in Stirling, Scotland. Since then I have given my first course in using Talking Mats when talking about abuse and harm. It was a great experience and an opportunity to work with an enthusiastic group of women who were open and willing to communicate using symbols. They are all in an organisation working with girls/women with intellectual disability exposed to violence and oppression in the name of honour.

I think Talking Mats is a good tool when approaching difficult subjects and I hope to run more courses like this in Sweden in the future. Lately I was interviewed on the Swedish Radio and talked about the use and possibilities with Talking Mats when someone is exposed to harm and abuse.

For those who know Swedish (!), here is a link to that program, http://t.sr.se/1mxZv9W

I am also curious if someone else is doing something similar. If so I would be interested to know more. Send an e-mail to: karin.torgny@gmail.com

Have a look at how Talking Mats has been used in Scotland to support people with a learning disability to disclose issues of concern: Survivor Scotland

Congratulations to our 5 new accredited trainers from Edinburgh City Council , Lothian NHS, Perth Kinross Council and SENSE Scotland

We had a great two days working together, exploring the Talking Mats framework and thinking about skills in terms of training and implementation of the Mats. Lots of chat but some key thoughts emerged that are worth sharing

  • Keep calm with Talking Mats and have a blether
  • Talking Mats gives the thinker the power to say ‘No’
  • Open questions create open dialogue
  • Children do but don’t get enough time to say
  • Recap; Talking Mats provide a visual summary of the conversation
  • It is easy to feel drowned out by other voices Talking Mats keeps the focus on the person
  • It is good to have 1 to 1 time and not just when things go wrong
  • The health and being resource is a perfect fit for the outcomes focused approach

There were lots of exciting ideas for future projects and further blogs which will expand on these ideas a bit more. So watch this space as the new trainers develop their ideas more.

If you are interested in becoming an accredited trainer click here

To mark Dementia Awareness week the Talking Mats team is keen to provide family training for relatives who care for someone with a communication difficulty.

Thanks to a generous donation from Miss Hendry Charitable Trust and support from Alzheimer Scotland, training has been carried out with family members at the Clydebank Alzheimer Scotland Resource Centre. Eight people who care for a relative with dementia (6 caring for a spouse and 2 caring for a parent) and one member of staff attended. None of the participants knew about Talking Mats before the training. They all cared for people who had difficulty expressing themselves and several told the group about the frustrations and despair they sometimes felt.

The training was carried out over 2 sessions.
Session 1 included an explanation to the background and purpose of Talking Mats, a demonstration, watching and discussing DVD examples, hands on practice, discussion of topics to be used at home with their relative and planning for next session.
Each participant was given a set of materials and by the end of the day all participants had understood the principles involved in Talking Mats and had gained the skills required to use it with their relative. They all said how much they had enjoyed the day and how much they had gained from it. They all committed to trying it with their relative and to bringing back their views to the follow up session. Each participant was given a post-it note at the end of the day and was asked to write any comments- positive or negative about the day.

Some of the comments:
This was a very positive course today. It has made me feel very hopeful about establishing a time of coherent dialogue with my mother – albeit in a focused way and also in providing a tool for her to communicate in a simple way, her own thoughts, Thank you.
• Informative, informal, surprising. I enjoyed the course and felt I had gained from it.
• Could be a useful tool. Can’t wait to try it with my wife. Thank you.
• The course was very informative and well worth the time spent. Talking Mats is a very simple idea which seems to be working very well. I’m looking forward to trying it out and hearing how the others coped and what the outcomes will be.
• This was a very informative day and hopefully gives us a great way of communicating to find out my husband’s views on subjects.

The participants were assured that they could get ongoing support by phone or email and the staff member at the resource offered to provide local support.

Six participants plus two staff came to the second session. The others were unable to attend due to their relative being unwell. We had lively and helpful discussions where each person shared their own personal stories of how they had used Talking Mats and what it meant for them.
Overall they felt that Talking Mats was a powerful and helpful tool and that it gave them quality time together with their relative with dementia. The following comments illustrate this:
small changes made a big difference
– It gives me time to sit down and listen to him
– It slows you down which is needed with someone with dementia
– It helps me know where he is at the moment
– It showed my husband the things he CAN do rather than what he CAN’T do

Relatives found out some things about their partner that they didn’t know e.g. one person with dementia had revealed that they didn’t like having the radio on all the time; another had toothache which the partner was unaware of; another said that food had become tasteless and he no longer enjoyed mealtimes as a result. The relatives were all able to do something as a result to help the situations – e.g. reduce the background noise of the radio, make a dental appointment, add more spice to their cooking.
One couple now use Talking Mats every few days on a regular basis to help the person with dementia think about issues and compare his mood from week to week
He always feels up after he’s done a Talking Mat
This couple had also given a demonstration of using Talking Mats to a family meeting at the resource centre

Overall the participants found Talking Mats very helpful although two felt it had not been successful. We discussed the reasons for this and the group were very supportive and suggested that the staff could help by introducing Talking Mats as a group activity at the resource centre where these two people could be included. The staff at the centre were also very positive and plan to use Talking Mats both with individual people and with groups.

Overall it was agreed that Talking Mats is a very useful tool both for individual families and for dementia centres. We discussed future plans for individuals and also for the centre. This included designing a Talking Mat to discuss football and another to allow the people with dementia who attend the centre to be involved in planning the centre’s new allotment.
We plan to continue our involvement with the Clydebank Resource Centre and are now in the middle of running the same course in other Dementia Resource Centres.

Anyone wishing further information about Talking Mats training for family members, please contact us at info@talkingmats.com

 

Many thanks to Lynne Baxter who has answered the question: Is Talking Mats suitable for parents to use?

I have been asked to write an account of my experience, as a parent, of completing the on-line course available for Taking Mats. I completed this course in April this year 2014 and I am very proud of my achievement. First some background information. I am nobody special just a parent of a child who has a diagnosis of Autism Spectrum Disorder/Condition. My son is in a mainstream setting and has limited access to support and resources due to financial restrictions. Through time I realised that I was his main resource for support and really needed to improve my knowledge and understanding of this “hidden disability”. I had already heard about the wonderful resource that is Talking Mats, the tool that help makes communication easier for many. I started to do my research and find out more about it. I am not a professional who has been trained on the Autism Spectrum, my knowledge is only from my experience of having a child on the spectrum. I was unsure if I would be able to do this. After much consideration I took the decision to give it a try! I am so glad I did. While insuring that the product would be of benefit to my family, I nervously contacted the wonderful supportive team at Talking Mats and asked them what they thought. They were very encouraging and I felt empowered to try the training course! They assured me that they would help me as much as they could. This was very reassuring to know and gave me the reinforcement I was looking for.

Every week I was given access to each module which I completed to the best of my ability. Anxiously waiting for the result and the feedback from the team to see if I was able to attempt the next module was normal for a Wednesday while doing this course. To my great relief the feedback was positive and before I knew it I was nearing the last assessment and the completion of the course. The last assessment involved me and my son using the resource Talking Mats, this had to be filmed and sent for grading! Once again I had to push myself out of my comfort zone! It will be worth it for the benefit the training would give to my family. A friend came and videoed the situation and it was sent off for feedback and grading.

I passed! The feedback was amazing and now I can use the resource that will help my son explain his thoughts and feelings in a concrete way. The hardest thing for me was not to influence the results, I had to make sure it was his views and not mine! I have now registered to use the app and I am continually surprised by the evidence. I am delighted with the continued support from the team and I am very grateful to them for the resource. My son finds it hard to express his emotions, thoughts and feelings. This gives me hard evidence of his opinions and is great to have to reference too throughout the years!

Having to use open questions has helped my son communicate more than he knows! A very good result!

For information about the online training click here 

I am a parent of a child in Primary one. We are expected to take our child along to the parent / teacher consultation meetings. After our first meeting I felt dissatisfied and no more informed. As a shy primary one, Eilidh gave no verbal feedback in the meeting, I felt I couldn’t voice any real concerns I had in case I knocked Eilidh’s confidence and the teacher was probably in a similar situation. Instead everyone was very nice but I left without any plan of action and no feeling that Eilidh’s teacher knew how she was feeling about her progress at school.

This time, I plan to be more prepared and to make sure Eilidh is properly at the heart of the consultation. I decided this time to use the new ‘Consulting Children and Young People’ pack, and felt the ‘my body and skills’ section was ideal for thinking about the key aspects of school life.

Eilidh engaged immediately with the mat and seemed confident with what the symbols represented. By the end of the mat and after going over it with her and checking if there was anything we had missed, I feel we have a really good starting point for discussion when we attend the meeting on Thursday.

The key points were:
Eilidh is most concerned about her drawing skills. Her face dropped when she saw the card. She perked up a little when she looked at the symbol as she decided she was good at drawing sunshine but not people. On discussion it turned out she really wants to be able to draw clothes on people. We talked about what we could do and decided she could do drawing practice with her dad (who is much better than me!). She was happy with this and has since already drawn a fully clothed person!

She is a bit unsure about numbers, writing and trying new things. These are things to discuss with the teacher but it shows her awareness of where she needs more support. Going to the toilet and drinking water both require her to ask the teacher for permission and she put those in the middle as she doesn’t always like to ask and often comes home with a full water bottle. This is something we can bring up and hopefully the teacher can reassure Eilidh it is fine to ask.

Finally, we were able to finish on a high as we acknowledged that she has really increased her confidence in talking (at school), reading and getting dressed independently. Again it really shows how aware she is of her own abilities and what she has struggled with in the past.

I would really recommend using the pack for this purpose. If I have time before the meeting I plan to use the other symbol sets to explore how she is feeling about the people at school (friends / teachers / support staff). By Morag Place

Eilidh’s Mat

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Talking Mats is fun! Whether you are sitting on the floor completing your mat or sitting at a small table, young children enjoy the fact that they can give information through multiple channels – Talking Mats is visual, auditory and tactile. It is an engaging tool to use when consulting children.They can express a view without words if they want to or they can have a conversation if they enjoy chatting. Watching a young child thinking and reflecting about where they place their symbol on the mat can be a humbling experience. Some adults still consider young children as incapable of expressing their views or opinions but in reality they can often express strong views about things and are very capable of grading their responses. Sometimes we just don’t take the time to ask them about the issues in their lives and free up some time to listen.

Talking Mats has created a specific Early years resource to make consulting young children easier. The symbols have been graded according to their developmental stage. When using the picture symbols it is important to remember:

  • Most of the symbols in the Early years pack are concrete and you can quickly identify the shared meaning for example – “drawing”drawing
  • Others are concrete but have a broader meaning. An example of this is when asking about “eyes”
  • eyesight

We have found that it is best to allow the child to interpret the meaning at their level so it maybe they have sore eyes; they don’t like their glasses or they have brown eyes. Try not to be too prescriptive when presenting the option to the child; a symbol can act as a jump off point capturing what fits for the child at the time. Just allow the meaning to emerge.

• The abstract symbols do need a bit more explanation because they ask about more complex concepts such as safety. The Early years pack asks about safety in relation to the road,  physical safety and safety around others.

keeping_safe_primary

 

Asking about daily routines will give insight into how nurtured and cared for they feel. Let the child lead the discussion as much as possible.

routines_preschool

Using visual communication is a great way to have a conversation with children in the early years and a good tool to involve children in decision making. Listening to the child’s view is essential for the GIRFEC process in Scotland and for co-producing Education Health care plans in England and Wales. Talking Mats has created a unique resource which is based on the “International Classification of Functioning, Disability and Health – Children and Youth version” Talking Mats uses a framework which helps children to express themselves in a way they feel comfortable with. As adults we need to be able to facilitate the conversation.

We find that to realize the full potential of Talking Mats it is best to attend a Talking Mats course . The courses allow you to focus on your situation and how you can be creative and apply it in your own work,

We are frequently asked if Talking Mats can be used by someone who is blind and we usually say ‘not really as its essentially a visual tool’. However today I had to eat my words when I was interviewed by Ian Hamilton who is a BBC Scotland TV and radio reporter. Ian is totally blind and was accompanied by his guide dog – a very large but gentle German Shepherd called Renton. Here is a link about Ian and Renton

When Ian asked me to explain Talking Mats I guided his hand to the positioning of the 3 top scale symbols and then he immediately understood the layout of the top scale, the topic at the bottom of the mat, and where to place each option by touch. I simply explained each symbol, placed it in his hand and he did the rest. The topic was how Ian feels about Domestic Life and we had a lot of laughs about his dislike of shopping, laundry and cleaning. He explained that shopping was a nightmare for someone who is blind. He said that the dislike of laundry and cleaning showed that he was lazy – I think it’s pretty much what lots of people think!

However he was clear about a number of things that he feels very positive about, in particular his daily routine and his security, both of which are very important because of his blindness. Interestingly he said that his guide dog is clearly on the positive side of the mat, but not as a pet. A dog like Renton is not just a form of mobility, he’s also a fantastic companion.

Ian seemed to keep 1 step ahead of me and asked loads of great questions about Talking Mats as a thinking tool and its possibilities for other groups of people. He commented that, like inventions such as the typewriter and the phone, Talking mats is something originally intended for people with a disability, but which is now being used by people of all abilities to help them consider issues and then express their views.

Ian generously agreed to me writing this blog and using his photo.

photo Ian HamiltonHope he doesn’t mind me including a picture of Renton. This is also a first for me as I’m really scared of dogs – especially enormous shaggy German Shepherds!!

The programme will be broadcast on BBC Radio Scotland : Business Scotland on 24th and 25th May

In the Health and Well-being resource, we have provided four sets of symbols to help people consider how they feel about their communication. Because communication is  complex and often abstract, it can be particularly difficult for people to express their views about it, especially if they have existing communication difficulties. To make this easier, we have divided communication into four topics:

  • Expression
  • Understanding
  • Learning and thinking
  • Relationships.

In the following example, I show how each topic can be used to build up a picture of how someone feels about different aspects of their communication. I worked with Kate, a 42 year old woman who had a stroke which left her with severe expressive and receptive aphasia. She was able to communicate through vocalisations and gestures. She could sometimes draw or write down words and needed to point to ‘yes/no’ in order to reliably answer closed questions. Following discharge from hospital, I used Talking Mats with Kate to find out how she felt about her communication. I started with the ‘communication – expression’ topic and found that she felt that she was having lots of difficulties making herself understood, particularly on the phone and in group situations:

Kate expression

I then explored how Kate felt about understanding what people were saying to her. Kate was able to tell me that she found it easier to understand people on a one to one basis rather than in a group setting. She indicated that it really helped her if people used gestures or wrote things down. Her main difficulty was understanding people on the phone, and in fact she had stopped answering the phone altogether (see mat below).

Kate understanding

We went on to do a mat about Kate’s learning and thinking. In this set, there are symbols which cover higher level language activities such as reading, problem solving and organisation. When we talked about these areas, Kate was able to tell me about the things she was finding most problematic, but could also identify some things that she felt she could still manage (such as calculations and reading newspapers).

Kate learning and thinking

I then asked Kate how she felt about communicating with different people in her life. This mat shows that Kate found talking to her husband and her parents (who lived quite far away) particularly difficult.

Kate relationships

As a result of doing these mats, we were able to target the things that mattered most to Kate in relation to her communication, and came up with the following actions:
1. Kate felt that her husband needed support and information, so we spent time working with him, showing him the best ways to support Kate’s communication.
2. Because Kate’s parents lived quite far away, she could only contact them using the phone, which was very difficult. We worked on getting Skype set up so that Kate could communicate with her family using all the modes available to her.
By splitting communication into different sub mats, Kate was able to think about different aspects of her communication and identify the things that she found most challenging. Together we began to work out some ways to help her overcome her difficulties.
Use the communication symbols to find out what people want to work on and use a collaborative approach to establish some goals to work on in therapy. I used the original Talking Mats when I explored  Kate’s communication with her, but you could do the same with Digital Talking Mats. Find out more about it here.

Within the Health and Well-being resource there are four symbol sets (health, looking after yourself, communication and leisure & environment). Within the ‘health’ set, there are three topics which can be used to help people express their views about different aspects of their health:
• Health
• Coping
• Mobility
I worked with Pete who had severe aphasia. Pete had a range of health problems, including epilepsy and high blood pressure. Pete found it very difficult to communicate with his GP, and usually relied on his wife to translate. This meant that not all of Pete’s health problems were addressed or discussed when he went to the doctor, and he often felt excluded from conversations at these appointments. Prior to one of Pete’s GP appointments, I used Talking Mats with Pete to find out how he felt about his health. During our discussions, Pete was able to tell me that he was worried about a number of issues, but he especially wanted to talk to his GP about his ears, as he was having a lot of pain and also had a ringing sensation in his ears which meant that he found it very difficult to concentrate, particularly when watching TV.

Pete health

Pete took the photo of his completed mat with him to his next GP appointment and his GP used this as a focus for discussions. As a result, Pete was referred to an audiologist for assessment. His GP also spent time discussing Pete’s epilepsy with him and referred him back to the epilepsy specialist nurse who worked with Pete and his wife to improve their understanding and management of it.

Using Talking Mats helped Pete prepare for his GP appointment and also ensured that his GP focused on what was important to him. As a result, time was spent more effectively by all and Pete felt listened to and really participated in his GP consultation.

Use the Talking Mats ‘health’ symbols from the health and well-being resource to help people prepare for appointments with health professionals and manage their health more effectively.

In a previous Blog, Joan talked about the four purposes of communication (Light 1988):
1. Expression of needs and wants
2. Information transfer
3. Social closeness
4. Social etiquette
Social closeness can often be overlooked when we support people with communication difficulties, as there can be a temptation to focus on what some see as the ‘important things’ – helping people to express their needs and wants or to transfer information. Social closeness is the glue which binds us together and helps us to form and maintain relationships. It’s really important that we establish this before we start exploring some of the difficult issues that many of the people we are working with face. In my work with people with severe aphasia, I spend time getting to know what matters to them and finding out what their interests are. This is a crucial part of building a relationship with the person and their family. It also provides a much more concrete starting point for beginning to explore rehabilitation goals, as this example shows:
When working with Jack (a man with severe receptive and expressive aphasia), I started by using Talking Mats to ask him how he felt about leisure activities. This was a great way to get to know Jack as a person and to find out his interests. During our conversation, Jack told me that he enjoyed going out for a drink but hated shopping and bingo – and we all had a laugh as he told me this. Jack also told me that he used to like ten pin bowling. He pointed to his leg to indicate that this was something he could no longer participate in as he was now in a wheelchair. I could see that this was important to Jack, so we talked about possible ways round his physical difficulties. Jack agreed that this was something he could work on with the help of his family and the rehabilitation team.

Jack

Given that Jack had severe receptive aphasia, if I had started by using Talking Mats to identify specific problems (using a top scale of ‘managing’ and ‘not managing’) as part of the goal setting process, it is highly likely that Jack would have found this too abstract and difficult to engage in. By using the more concrete topic of leisure (with a top scale of ‘like’/’dislike’), Jack was able to reflect on his life since his stroke and tell me how he felt about his restricted physical abilities. I was also able to build up a picture of him as a person and we had fun at the same time.

When using the Health and well-being resource, think about the person you are working with in relation to the ideas and concepts that they can cope with. Exploring leisure activities is a great way to start as it means you can establish rapport by finding out what matters to them.

Have a look at this Blog to see how other people have used a topic such as leisure to build social closeness.

 

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