Five short stories from our recent accredited training course in Stirling.

1. A looked after child was unhappy but no one knew specifically why. Using the Talking Mats, she indicated that she was upset by the weekly phone call with her mother because it always happened when it was her playing time. The time of the call was moved to just before her bedtime but this resulted in bad dreams. The time of the call was finally moved to Saturday afternoon which helped her settle and reduced her distress.
2. Talking Mats was used with an Iraqi boy who had come to England via Libya, Italy and the jungle camp at Calais. When he picked the symbol of a waiting room he indicated that despite all she had been through he really liked this because it reminded him of all the children in his family and made him happy.
3. A 76-year-old man with a learning disability disclosed that he had been attacked and suffocated by his upstairs neighbour one week previously. It was only when he used the Talking Mats that he disclosed to anyone what had happened.
4. A lecturer usually used quantifying measuring with her students to find out how they were managing their studies. Instead she used Talking Mats to find out how they were coping with their work life balance. One student told her that she was managing fine except that her pet rabbits always escape under the bed and it takes her a long time to get them back out so she does not let them out very often!
5. Talking Mats was used with a man who had had a stroke and had to go into residential care because his family could no longer look after him. They were very worried that he was unhappy with the new care set up. He was able to show with the Talking Mats that he was happy about everything except that he was not given enough time when he went to the toilet. Once the staff realised this they then gave him more time which resolved the situation and reassured his family.

Please send us your Talking Mats stories – we love hearing them.

We’re always amazed to hear from people about the variety of topics they cover using Talking Mats –from how someone is managing their self care or domestic tasks, to arranging a wedding, or thinking about whats important at a funeral.

As a communication tool Talking Mats maximises a person’s capacity to reflect on a topic and express their view.   It gives confidence in decision making.

Here are some other topics we’ve heard about recently.

• As a conversation tool in class
• Pupil voice in school improvement plan
• Client contribution to meetings and review day placement
• Respite
• Operations e.g. gastrostomy
• Health
• Postural management
• Where to live
• Childs opinions in relation to GIRFEC
• Respite feedback/choices
• SW assessments
• Choices available within service
• Going somewhere new
• Transitions
• Problem solving ie horse riding, identifying the problem
• Eating and Drinking
• Keeping Safe
• Social Media

What do you want to talk about?  There is no limit!

We are now half way through our project, funded by The Health and Social Care ALLIANCE Scotland, whose overall aim is to empower people with a range of long term conditions, with and without additional communication difficulties, to self-manage their own health and well-being by using Digital Talking Mats.

Participants

We have carried out all the initial visits and 16 follow-up visits and participants are sending in their completed mats, choosing whichever topics they want from the digital Health and Well-being resource. At the time of writing this blog we have received 137 completed mats.

We have received very positive feedback with many examples of how people are using the Digital Talking Mats to self-manage.

Here are 3 examples:

One participant with learning disability has diabetes. Through using the Digital Talking Mats she has stopped buying takeaways every night and is now buying M&S ‘Balanced for You’ meals. This is a huge step forward for her as she refused to discuss healthier eating before.

A man with early onset dementia has identified that he used to enjoy singing and has decided for the first time in his life to join a choir. This is not something that had come up in conversation before. Despite the diagnosis of dementia he has realised that he is still keen to try new things.

 

 

The wife of a man with severe aphasia said ‘This (Leisure away) has highlighted how few things he can do away from home. We discussed this but can’t see how we can change the situation.’ However at the second visit he used the same mat and indicated that he had been thinking about his mobility and was about to start swimming and a fitness class.

We already have an increased awareness of the meaning of self-management as we observe how participants are using the Digital Talking Mats to think about their situation, state their own views and share them with carers/support workers. We are also noticing that there is a shift in some relationships as the carers/support workers realise that the person with the long term conditions can make decisions and express their own views rather than having decisions made for them.

We are very grateful to Marieke Lindenschot from the Netherlands for this great blog about finding out what activities children like and we look forward to hearing the next stage of her PhD.

For my PhD research in the Netherlands I use Talking Mats as a tool for my interviews with children. The children I interview vary in their communication abilities. Some are able to express their opinions and feelings very well, others are not able to communicate orally. As I was able to purchase the Talking Mats cards without text, I wrote down the words in Dutch in ‘children’s language’ on the cards.

Last week was an exciting week. I conducted the first pilot interviews with a boy of 12 years, a boy of 9 years and a girl of 8 years. They varied in their development. The first interview went great. The child could express which activities he liked, which he disliked and which were ‘so, so’ (in between like and dislike). With Talking Mats he could also tell me with whom he performed the activities and where. It was a fun way to get a lot of information in only 15 minutes! The child and his mother were very enthusiastic. He was able to tell a lot more then he usually does when he is asked about his activities! Unfortunately the other two interviews didn’t produce the same amount of information. The cognitive level of these children seemed too low to use Talking Mats. The boy didn’t understand the top scale ‘like’ and ‘dislike’, whereas the girl didn’t recognize the activities on the cards.
Overall we were very satisfied with these pilot interviews. The goal was to check if the interview guide with Talking Mats ‘worked’ and also to see for which developmental level this way of interviewing is possible. The pilot interviews gave a lot of information on these two goals. I am looking forward to the next interviews as Talking Mats showed to be a very helpful tool in finding out which activities children like.

Please send us any other examples of how you have used Talking Mats.

The Keeping Safe Talking Mat resource provides a structured framework to ask someone ’How’s your life going?  It has 3 topics: Your Well-being;  Relationships; Thoughts and Feelings

Do you find it difficult discussing feelings with people who have limited understanding?

Do you have limited time to discuss sensitive issues with people?

Do you want to find out any issues which may be slowing recovery or preventing someone moving forward in life?

A cost benefit analysis demonstrated that using the Keeping Safe resource to create a listening space for people to think and share how their lives are going, is cost effective for organisations.

The design of the resource is described in the Tizard Learning Disability Review More Than Pictures TLDR 2017

It has been trialled and tested with people with learning disabilities throughout Scotland, but has also been used effectively with a range of people who find it difficult to discuss their life e.g. Young people with mental health condition.

It  has been shown as a helpful way to

•      discuss new information (89%),
•      discuss and resolve fears (84%)
•      support thinking (89%)

This poster gives an overview of the project KS 2nd Poster (click to enlarge)

The Thoughts and Feelings topic uses a different top scale and this resource is best used by people who have completed Talking Mats Foundation Training.  If you want to buy it (£55.00 +VAT)  contact the office  www.talkingmats.com   tel. (+44) 01786 479511

Health professionals from Stockport have shared how using Talking Mats has positively impacted on their clinical work.

Laura, our North West  Associate, met up with Carla Innes, Clinical Psychologist for learning disability from Healthy Young minds Stockport (a child and adolescent mental health service provided by Pennine Care NHS Foundation Trust) and Clare Royle, Family Support Worker,from the Children’s Learning Disability Team (provided by Stockport NHS Foundation Trust). The two organisations work closely together to provide joined up care to young people with a learning disability.

Six months ago Carla, Clare and seven others from the Healthy Young Minds Stockport Team  received training to enable them to introduce Talking Mats as part of their challenging behaviour pathway.

Carla and Claire said that the staff team are very positive about the impact of Talking Mats. The overall impression is that Talking Mats has enabled staff to gain an individualised sense of the child or young person they are working with, as well as empowering the children and young people to share their views and opinions. Carla also notes that using Talking Mats has helped her to focus on the child/young person’s abilities/potential – their ‘zone of proximal development’ – and to ensure that everyone is working within that.
Some of the other positive features of using Talking Mats include:
– Providing ‘headspace’ for the child/young person to process their thoughts and to really consider what is important to them.
– Giving a holistic, child/YP centred account and narrative of their feelings and behaviour.
– Helping to inform and direct clinical decision making e.g. introduction of an approach such as CBT.
– Enabling children/young people who have previously refused, or been very reluctant, to share their views and opinions about topics which have been troubling them for example, school attendance and issues with sleep.
– Providing of a communication framework which is neutral and non-threatening – much less intense than direct verbal questioning or conversation.
– Helping to make abstract concepts more concrete for the listener to understand.
– Being a safe, flexible and quick method of finding practical solutions and determining direct actions.
– Enabling the listener to gain a better understanding of the thinker’s level of knowledge and understanding about a particular topic such as healthy eating. This can help inform capacity assessments e.g. in terms of medical consent or the use of medication. The mental capacity act states that appropriate support should be given to young people to make informed decisions and to communicate those decisions.
In addition, from a wider team perspective, Carla and Clare report that they have all noticed benefits in terms of consistency of Talking Mats use by all members of the multi-disciplinary team. Each team member using the Talking Mats tool is working from a slightly different perspective; using Talking Mats ensures that the child/young person is kept at the centre of the process. This results in a truly holistic view of the child/young person’s feelings, views and opinions.

Conversation with friends is key to our well- being.

Talking Mats is a tool to maximise people’s capacity to communicate about things that matter to them.   For people with communication difficulties the ability to have a good conversation is restricted.  For this reason we have developed Conversation sets, described in an earlier blog http://www.talkingmats.com/talking-mats-conversation-sets/ 

The topics include Holidays, Gardens, Trips out, Sport.  Football even has one if its own!

Some of the members of the National Involvement Network in Edinburgh tried out the conversation sets.  Fiona’s conversation is generally limited to responding to questions and she has a tendency to agree with what other people say.  Using the Holidays topic, she told me that she liked camping and added that she had tried this a long time ago when she was a member of the Girl Guides.    I told her I had also been camping with the Girl Guides so immediately this created a bond between us.  Sharing experiences can be the start of a friendship.

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David and James used the Football topic to chat about a recent match they had attended together.   Before using the mat to discuss the match they did not know that they had felt differently about the stadium and the crowd.  This was a surprise and stimulated further chat. Together they relayed a funny incident that had happened and we all had a good laugh- another aspect of building friendships.

David and James have good conversational skills but the Talking Mat took their conversation to a more detailed level.  For people who have difficulty getting involved in conversations these topics allow them to share experiences and find links with other people.

A conversation is an informal interaction, between two or more people, in which news and ideas are exchanged. Having a conversation can be an enjoyable activity for people and is an important part of socialisation but is often hard for people with communication difficulties to take part and hard for families, friends and staff to support these informal conversations as well as finding topics to talk about. We have developed a range of Talking Mats symbol sets called Conversation Topics which can be used by people of all ages and abilities to take part in conversations and have a chat.

These are now available to anyone who has completed a Talking Mats training course.

Each Conversation Set is made up of 3 topics with specially designed symbols. Click on the image to enlarge.

Examples of how this resource has been used during our pilot phase:

Gardens: A resident in a Care Home chatted about what she liked and didn’t like about the Care Home gardens and made some suggestions for changes.

Trips Out: A group of people at a Day Centre planned where they wanted to go for their weekly outings.

Holidays: A young man with a learning disability talked to his social worker about where he had gone on holiday and what he had enjoyed.

Indoor Sports: A woman with a stroke chatted with her friend about the sports she wanted to try at the local Sports Centre.

Outdoor Sports: A man with dementia talked about the sports he used to do when he was younger.

Football: A group of people with learning disability chatted about what they liked and did not like about a football game they watched on TV. This set provoked lots of lively discussion.

Keep a lookout for further sets in the future.

If you have completed a Talking Mats training course and would like to order these sets please contact info@talkingmats.com or phone 01786 479511

Other resources to expand your use of Talking Mats can be found on our website – www.talkingmats.com.

Thanks to Gill Pearl for sending us this information about an international conference for people with aphasia.

Where:  Warwick Conference Centre, Coventry, England

When:  Sunday 5 and Monday 6 March, 2017

Families, friends, aphasia and stroke organisations, and health professionals are also invited. People with aphasia have planned the conference and will chair the sessions.

The information will be presented in a way that is easier for people with aphasia.  There will be support from therapists and students to help people to join in.

The following themes will be discussed

•  technology and aphasia, learn and have a go
• increasing awareness of aphasia, and using social media
• sharing what’s happening about aphasia around the world
• research
• support for carers of people with aphasia
• aphasia and the arts.

There will be an exhibition of products relevant for people living with aphasia

This is a wonderful opportunity to

• Do something new, develop confidence, be inspired
• Learn from each other and share ideas
• Find out about new services and ways to help
• Meet people with aphasia from around the world!

If you want to find out more, contact Gill or Denise at

• info@buryspeakeasy.org.uk
• gill@buryspeakeasy.org.uk
•  01706 825802    (part time office)

We are delighted to be travelling to Australia and New Zealand in May 17 and look forward to the opportunities the trip gives us to discuss Talking Mats in these countries.

Firstly, we are pleased to have been invited over to Australia to be involved in the Agosci Communication Conference in Melbourne from the 18-21 May 2017. Agosci is an inclusive organisation that supports the participation of all people with complex communication needs. The theme of this conference asks participants to involve people with complex communication needs in all aspects of life to create a more welcoming society for people with communication support needs.

Lois and Nicki will be attending for Talking Mats and their involvement at the conference includes

• A one day pre – Agosci conference Foundation training for professionals in Melbourne
• 2 presentations – one on the potential use of Talking Mats in National Disability Insurance Scheme (NDIS) and one on our current  Keeping Safe project
• A poster on using Talking Mats in Eating and Drinking
• A stand which will run throughout the conference and where we can and meet and chat to delegates

In addition prior to the conference we are running

• A one day Foundation training in Sydney for Hammond Care

New Zealand

Plus we are really pleased to have linked with the Talk Link trust in New Zealand and will be visiting both Christchurch and Auckland and running foundation courses in both those places. New Zealand can be proud of their world record of electing Robert Martin in June 2016  to become the first person with an intellectual disability to serve on the UN committee dealing with people with disabilities. It feels a privilege going to a country which is providing such leadership in self-determination.

Train the trainers     

We fly back to Melbourne and run a two day Accredited Training in St Kilda’s Melbourne for Australian and New Zealand professionals previously trained in the use of Talking Mats via our online course. This course will allow them to train others within their respective organisations. By providing our accredited training and ‘training the trainers’ we are facilitating the increased use of Talking Mats in Australia and New Zealand . This increases professional skills, improves the quality of the service being provided and most importantly improves the quality of life of the person with the communication difficulty by assisting them to express their views.

So a busy schedule but exciting and we hope to have some time off to relax and enjoy new sites and a different culture. There will be more blogs to follow……… Plus if anyone has any top tips for coping with long distance flights we would like you to share them!